Article: Anne Twist attends #Symfunny No. 2 benefiting Parkinsons.org.UK
April 19, 2017: Harry Styles’s mum, Anne Twist, gave her support this evening for the fundraiser #Symfunny No. 2 at the Royal Albert Hall benefiting Parkinsons.org.UK Mrs. Twist shared a picture on her Instagram with a screenshot of the event’s setup where all those interested could see where and how to send in a donation.
Anne and other members of her family, have been active supporters of charities for Parkinson’s for years. These charities are involved with awareness, sustaining critical research, and easing the burdens of those suffering from the disease and their caregivers. Below is Anne Twist pictured with Gemma and Harry Styles, and her father, Mr. Brian Selley at a 2014 Parkinson’s Awareness function at 10 Downing Street. You can read more of their involvement from one of our earlier posts found here .
The history of the #Symfunny events began with music producer, composer and conductor James Morgan, who was diagnosed with young onset Parkinson’s at the age of 42.
He and his partner, music composer, Juliette Pochin, saw a way the bring awareness and support for research by using their musical connections to highlight the impact of Parkinson’s.
For this year’s event, the #Symfunny No. 2 set up a way for those enjoying the symphonic performance in attendance and at home could send their donations in to Parkinson’s UK by phone text.
So, what is Parkinson’s disease (PD)? How is a diagnosis of the disease such life altering news and what can be done about it?
Parkinson’s Disease is a neurodegenerative brain disorder meaning it is a progressive neurological condition which causes problems in the brain and gets worse over time. There is no cure for Parkinson’s and while the disease itself is not fatal, it’s a slow-developing, debilitating disease affecting a person’s brain which slowly stops producing a neurotransmitter called dopamine. With less and less dopamine, a person has less and less ability to regulate their movements, body and emotions.
This leads to someone becoming increasingly dependent on others for care in their basic needs. Complications from the disease are quite serious as the Centers for Disease Control and Prevention (CDC) rated complications from PD as the 14th top cause of death.
Statistically, according to data from Parkinsons.org.uk one person in every 500 gets Parkinson’s, which is about 127,000 people in the UK alone. The symptoms and speed at which the disease progresses is very individualistic and that’s why awareness is crucial to make earlier treatment interventions possible.
Although strides have been made through research, finding a cure is still a vision of the future. In the meantime, charity supporters like Anne and her family play a critical role in continuing quality care for those living day-to-day with this progressively debilitating disease.
Events such as the one held last night at Prince Albert Hall with Symfunny #No 2 are very beneficial to Parkinsons org. with their continued support through the years. @ParkinsonsUK tweeted thanks to their performers and patrons last night: