Category Archives: Johannah Deakin

Article: Rett Syndrome Research Trust and Reverse Rett

Article: Rett Syndrome Research Trust and Reverse Rett November 12th, 2017: Rett Syndrome Research Trust (RSRT) was founded in 2008 by Monica Coenraads, the mother of Chelsea, a now 21 years old beautiful and resilient young woman affected by Rett syndrome. The UK … Continue reading

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Article: Founder of A Sibling’s Wish, Sarah Hext attends the Women of The Year Lunch

Article: Founder of A Sibling’s Wish, Sarah Hext attends the Women of The Year Lunch October 22nd, 2017: On October 16th Sarah Hext, founder of A Sibling’s Wish and mom of “fly high buddy” Harvey Hext, attended the Women of … Continue reading

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Article: A Sybling’s Wish, a year of cherished memories for siblings

Article: A Sybling’s Wish, A year of cherished memories for siblings  August 19th, 2017:  A Sibling’s Wish is marking its very first year as an officially registered charity in the UK. A Sibling’s Wish has reached an important milestone by … Continue reading

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Article: Harvey Hext’s Gift

Article: Harvey Hext’s Gift July 30, 2017:  This day marks the birthdate for two very special boys, Harvey Hext and his twin brother, Spencer. Together as “partners in crime” they won the hearts of their hometown of Winford, the whole … Continue reading

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Article: Niahm’s Next Step

Article: Niahm’s Next Step July23, 2017: The neuroblastoma charity Niamh’s Next Step was founded by Chris and Sam Curry after the loss of their 5 year old daughter Niamh to neuroblastoma in May 2012. Niamh was diagnosed with neuroblastoma 18 months … Continue reading

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Article: Sally Deakin runs London Marathon in memory of Johannah

Article: Sally Deakin runs #LondonMarathon in memory of Johannah April 24, 2017: The London Marathon held its 36th annual run yesterday with over 50,000 participants and thousands more to cheer them on. Sally Deakin (sister-in-law to Louis Tomlinson’s mum, Johannah Deakin) was … Continue reading

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– @Heads_Together is Charity of the Year for the 2017 London marathon

– @Heads_Together is Charity of the Year for the 2017 London marathon February 08, 2017: The 36th annual London Marathon has named the mental health advocate group, Heads_Together ,as Charity of the Year. The declaration makes this the first ever mental health-focused marathon. This … Continue reading

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